Coventry South’s Member of Parliament was honoured to present an award for a team working to support people with Motor Neurone Disease (MND) in Coventry. For their dedication to providing treatment to sufferers of Motor Neurone Disease the Coventry Integrated MND Team were presented with the Extra Mile Award. This award is given by the MND Association recognises the outstanding support and care that Health and Social Care Professionals are providing people affected by MND.
The Group was founded in 2009 and comprised of a team of health professionals with a special interest in MND. They recognised that the existing MND pathway was not supporting people living with MND as best as it could, with patients reporting difficulty accessing information after diagnosis, difficulty accessing appropriate health and social services in a timely manner and having to travel long distances to access respiratory support services. It was also recognised that there was a lack of understanding of MND from generalistmedical, nursing and allied health professionals and social services.
It was then agreed that alongside the special interest group there would be a monthly clinic for patients to attend where they could meet with the MDT in one appointment,supplemented by continued support from specialists within the community teams as required by the person living with MND.
Through these monthly meetings the Team have been able to drive coordination and cooperation between health and care providers whilst also keeping up with current trends, and update on research information and drug trials.The core team have also done much to support people living with MND in Coventry.
Alison Noakes the Regional Care Development Adviser for the MND Association said “I’ve nominated the team with this award because they consistently demonstrate coordinated support for people living with MND and I think we should recognise this. Being given a diagnosis of MND is devastating, but this team work hard to ensure that the person with MND can continue to live as well as they can with the disease.”
Jim said “It was a pleasure to present this award to the team here today. This award recognises the outstanding support and care given by this team and proves that the team have gone consistently above and beyond the call of duty. I wish the team the very best for the future and I look forward to celebrating their future successes and achievements over the many years to come.”